Us before Myeloma

Celebrating our 5 year Anniversary a few days early. Wow! We've both changed over the past few years.

Wednesday, August 27, 2014

Good Things Are Happening

So much has happened over the last week. To start with Stevan gained custody of his daughter, Brett. She told us last October she wanted to come live with us, so we filed for custody and finally got her. This has made a world of difference for Stevan, giving him something to look forward to everyday. Being a full time Dad. Going to pick her up after school, going to her softball games, hearing her talk about the new friends she's making, being the first to learn she scored a 90 on her pre-algebra test on her second day of school, and making the first team on her softball team. It's been good for him!

Thursday we went to OKC to see Dr Selby, Stevan's Oncologist, to get the results of his blood work from the week before. He's had some pains under his left breast for the last three weeks and it seems to have moved around to his left shoulder blade and the back of his left arm (this is the arm that broke three years ago and has a steel rod in it).

We saw the doctors assistant who went over the test results telling us that the kappa light chain had come up from 64.06 to 119 and the lambda light chain was down from 13.18 to 7.98. The last time we had tested, back in April the ratio of the kappa and lambda was about a 5 which is closer to one, which is what the doctor wants. This time the ratio was closer to 15, which is a lot further from one. I asked the assistant about his protein level. She didn't think they tested it, since she didn't see it, but after searching the lab work she found that it said protein no observed! Which means the protein that damages his bones was nonexistent! This is great news!

Dr Selby came in at this point to discuss, Stevan's pain in his chest, shoulder and arm. They think they found a small soft tissue mass under his left breast. He said they think this could be a myeloma mass of cells like what Stevan had behind his eye at the first of last year that they had to radiate. Selby ordered a full body X-ray panel to see if they could determine for sure what was going on there. He said if it came back inconclusive, they would order a CT scan. We have yet to find out the results of the X-rays.

So what have we been doing since Stevan's been off of his chemo for the last two month? This is a question I will answer in the next post. It's one you will want to read. I will try to answer this question this weekend when I have time to write the details of the last two months of alternative therapy.
Thank you for your prayers. They are always appreciate!

Thursday, August 14, 2014

End Of The Summer

Summer break began at the end of May, but June and July quickly slipped away. Now its August and I'm back in school. Stevan is headed off to OU this morning to get labs drawn so we can discuss the next stage of treatment with his Dr Selby, his Oncologist, next week.

So much has happened since the last time I posted. We have so much going on with the kids, his treatment and my work and school (yes, I'm going back to school). I will try to post a little bit each day over the next week, to catch everyone back up, if I dont see you on a daily basis.

Our favorite saying is no news, is good news. So nothing really drastic has happened. But we do hope we have good new next week from the doctor and I can then explain some things we have been doing with Stevan's treatment.

So for now. Thank you for the prayers.