In Stevan's words to Dr. Jennifer Holter this morning, "I don't feel any different than I normally do." He has had arm and back pain and diarrhea from his adrenal gland not working for so long, what he's going through now seems like no big deal. After eating a few bites of his breakfast, he slept several hours this morning. He's still got some pain in his right upper ribs, but it is better than it was.
We are trying to get his diarrhea under control with Imodium every 4 hours, but haven't reigned it in yet. We are keeping his nausea in check with Zofran, Ativan, and Phenergan. We have found if he takes either Zofran or Ativan before he eats, he doesn't get sick. If he's feeling sick to his stomach around bedtime, Phenergan helps and puts him to sleep. So far he has not experienced major Mucositis, which is sores in his mouth. As of this morning he has just a small sore, so his Chlorhexidine Gluconate (Peridex) oral rinse is working. Today he has been drinking a lot of water. I'm guessing he's slightly dehydrated since he's craving water.
Stevan has become very sensitive to the smells around him, to the point his food doesn't smell good. I had to laugh this morning when he said his eggs, pancake, and sausage tasted like it smelled... "well I would hope so" is what I was thinking. He has not had much of an appetite, but has forced himself to eat a little each day. He says everything taste like cardboard. Even the chocolate milkshake I got him tonight tasted like chalk, but he drank about half of it, along with the patti from his hamburger I picked up for his dinner. As you have guessed, we both are tired of the hospital food, so I've been picking up a few things that sounds good to him locally around the hospital.
His counts for today were
White Cell .2
Red Cell 3.47
Hemoglobin 10.8
Platelets 52
He had a low potassium count last night so they gave him 40 mEq through his IV.
I must say we are are very blessed that he's not experienced severe symptoms so far. They say he will loose his hair, but so far its hanging on. This morning the doctor said she's expecting us to be here another 7 to 10 days. They say his numbers will continue to come down before they go back up. So we will continue to wait.
Us before Myeloma
Celebrating our 5 year Anniversary a few days early. Wow! We've both changed over the past few years.
Wednesday, May 30, 2012
Tuesday, May 29, 2012
Good Day +6
Yesterday and today has been pretty uneventful all the way around. Other than Stevan having diarrhea yesterday and today he's been pretty good. At midnight last night he had a small fever, 99.2 so it was nothing to be concerned about. Dr. Jennifer Holter stopped by this morning for a quick look at Stevan. She is now on rounds here in the unit, so we will be seeing her daily until Stevan leaves.
Stevan's red headed nurse, Jenni, told him that he was getting the floating nurse tonight. The regular unit nurses are to work the sicker patients and he wasn't that sick... LOL that made him feel good!
Stevan's counts today were:
White cells are now at a low of .1
Red cells 3.50
Hemoglobin 10.6
Platelets 72
Grace, his nurse yesterday told us that they will be closely watching each of these but when his hemoglobin goes below 8, they will give him a blood transfusion. If his platelets go below 10, he will then get platelets. Yesterday I requested my readers to donate blood. It is actually really needed, since outside the Oklahoma Blood Institute has signs up outside their building, stating there is a blood shortage. A nurse told me that it is not normal for the OBI to have those signs up.
The only excitement we have gotten today has been tonight when the thunderstorm came through and the tornado sirens in town sounded. Then the softball size hail fell for a good 10 minutes. The nurses thought we were going to have to go into the hallway, but we didn't. I was glad that I had parked in the parking garage this afternoon. It continues to storm here but I think the worse is over.
I am continue to take care of myself and get out of the hospital. Today I went to lunch with Pam Burnside. She and her husband are the parents of a former coworker of mine from Plano, TX, who took us in last summer while Stevan had his first round of radiation. Wonderful family!
We actually have had many families and individuals help us throughout this rough time. We have neighbors looking out for our animals at home as well as our house. Just checking in with us to see how we are is such a comfort to us. So thank you for all that you do to help and comfort us. You are a blessing to us.
Stevan's red headed nurse, Jenni, told him that he was getting the floating nurse tonight. The regular unit nurses are to work the sicker patients and he wasn't that sick... LOL that made him feel good!
Stevan's counts today were:
White cells are now at a low of .1
Red cells 3.50
Hemoglobin 10.6
Platelets 72
Grace, his nurse yesterday told us that they will be closely watching each of these but when his hemoglobin goes below 8, they will give him a blood transfusion. If his platelets go below 10, he will then get platelets. Yesterday I requested my readers to donate blood. It is actually really needed, since outside the Oklahoma Blood Institute has signs up outside their building, stating there is a blood shortage. A nurse told me that it is not normal for the OBI to have those signs up.
The only excitement we have gotten today has been tonight when the thunderstorm came through and the tornado sirens in town sounded. Then the softball size hail fell for a good 10 minutes. The nurses thought we were going to have to go into the hallway, but we didn't. I was glad that I had parked in the parking garage this afternoon. It continues to storm here but I think the worse is over.
I am continue to take care of myself and get out of the hospital. Today I went to lunch with Pam Burnside. She and her husband are the parents of a former coworker of mine from Plano, TX, who took us in last summer while Stevan had his first round of radiation. Wonderful family!
We actually have had many families and individuals help us throughout this rough time. We have neighbors looking out for our animals at home as well as our house. Just checking in with us to see how we are is such a comfort to us. So thank you for all that you do to help and comfort us. You are a blessing to us.
Monday, May 28, 2012
Counts are Down Day +5
Stevan slept most of the afternoon yesterday after getting sick and up-chucking his dinner from the night before. His nurse Elaine gave him an anti-nausea medicine that made him sleepy. His throat is getting sore and they say the mouth sores are soon behind. His ribs are still hurting but they are feeling better.
Stevan's appetite is still down. He forced down some chicken noodle soup last night and ate a few bites of eggs and pancakes this morning. Soon after he started getting sick to his stomach again. His nurse for today, Grace, gave him some more anti-nausea that she says shouldn't knock him out. But he's now sleeping again with out loosing his breakfast, so he's doing good.
Here are his counts for today. As you can see his white cells are almost as low as they can go.
Platelets 112
They are speculating that they may need to give him platelets this evening. With his counts being so low, they think he will begin to run a fever and that tends to eat up his platelets. What will a low platelet count mean? Well that could cause bleeding. The platelets allow the blood to clot to keep from bleeding to death.
Now what can you do to help? There is always a need for blood at hospitals and at the local blood bank. With this being a holiday weekend, there is even a bigger need, due to higher rate of accidents. I'm asking everyone who can, to find a place to donate blood in the next couple of weeks. If you donate with the Oklahoma Blood Institute you can request to donate in the name of Stevan Ray Womack, which will give him a credit to his account. You may need his birth date is 5-9-71. This will replenish what he uses from the blood bank.
They ask that you don't request for your blood to be sent to him. For those of you in Texas, Arkansas or other states, I'm not sure if you can donate in his name but you can try. Just tell them his name and that he's at OU Medical Presbyterian Tower. If not you are at least helping someone who will need it.
Since Stevan is sleeping, I'm headed out this afternoon to spend some time with a friend this afternoon out of the hospital. Thank you for the continued prayers. I know they are working because Stevan could be going through a lot worse than what he is.
Stevan's appetite is still down. He forced down some chicken noodle soup last night and ate a few bites of eggs and pancakes this morning. Soon after he started getting sick to his stomach again. His nurse for today, Grace, gave him some more anti-nausea that she says shouldn't knock him out. But he's now sleeping again with out loosing his breakfast, so he's doing good.
Here are his counts for today. As you can see his white cells are almost as low as they can go.
White Cells .2
Red Cells 3.45Platelets 112
They are speculating that they may need to give him platelets this evening. With his counts being so low, they think he will begin to run a fever and that tends to eat up his platelets. What will a low platelet count mean? Well that could cause bleeding. The platelets allow the blood to clot to keep from bleeding to death.
Now what can you do to help? There is always a need for blood at hospitals and at the local blood bank. With this being a holiday weekend, there is even a bigger need, due to higher rate of accidents. I'm asking everyone who can, to find a place to donate blood in the next couple of weeks. If you donate with the Oklahoma Blood Institute you can request to donate in the name of Stevan Ray Womack, which will give him a credit to his account. You may need his birth date is 5-9-71. This will replenish what he uses from the blood bank.
They ask that you don't request for your blood to be sent to him. For those of you in Texas, Arkansas or other states, I'm not sure if you can donate in his name but you can try. Just tell them his name and that he's at OU Medical Presbyterian Tower. If not you are at least helping someone who will need it.
Since Stevan is sleeping, I'm headed out this afternoon to spend some time with a friend this afternoon out of the hospital. Thank you for the continued prayers. I know they are working because Stevan could be going through a lot worse than what he is.
Sunday, May 27, 2012
And We Thought We Were Having A Good Day: Day +3 and 4
It seems to never fail, when I leave the hospital even for a short time,
Stevan has drama. Yesterday was going so well. Stevan was still having some rib
pain on his right side but with pain meds, he was managing. He had eaten breakfast a little lunch. He seemed to be doing good so I went to catch up
with a former co-worker and get our laundry done up. He requested I bring
back fried chicken, which he can’t get from the hospital cafeteria. I texted
him several times so he would know what I was doing and would soon be back.
After I took care of everything, including going to Wal-Mart to pick up another
couple of shirts and sweatpants for him, it was after 10:30 PM by the time I
got back to the hospital.
He was so excited to get his chicken but after eating he said that it didn’t have any flavor. It tasted like cardboard. He then proceeded to tell me that after I had left they had taken him downstairs to get x-rays of his chest, due to the pain had increased. It got so bad that they had to give him morphine to ease the pain faster. They also gave him some cream to put on his ribs that should help relax the muscles around the ribs. They had taken him off oxygen earlier in the day, but since he was on morphine they put him back on the oxygen. His tongue has turned white. Not sure why. They have given him another mouthwash to help with that.
By the time his red headed nurse, Jenni came in to do his midnight vitals, he was again in a lot of pain and wanted to sleep. She gave him some Benadryl and Morphine and out he went. Throughout the night she gave him more morphine and finally some Oxycodone this morning so it would last longer.
The doctor on call this weekend is Dr Carla Kurkjian. She examined Stevan’s ribs and told us that the x-rays showed nothing was broken and that it was more than likely from the neulasta shot he received on Thursday. She told him to be sure and do his breathing exercises so that he would expand his lungs and prevent pneumonia.
Dr. Khalil, Stevan's hematologist oncologist, stopped by this morning to visit. He asked if Dr. Holter has discussed with us, maintance medicines after the transplant. He agrees that there is not a right or wrong way to proceed, but encouraged us to begin thinking about what we want to do after the transplant is complete and be ready to discuss it with him and Dr. Holter at that time. Stevan is looking forward to not being on any meds after treatment if they are not needed. The Revlimid, makes him shaky and the dex has its own symptoms he has to deal with.
As I began to type this post up, Stevan got sick to his stomach and up came his fried chicken from last night. I called the nurse and she brought him some more anti- nausea medicine. This time it has knocked him out. He should sleep most of this afternoon.
Seeing him like this is heart breaking. I know that he's ok when he picking on me and giving me a hard time. When he's not feeling good he gets really sappy and lets his guard down. Over the last couple of days I've seen him near tears as his chin begins to quiver. He's been quite clingy over the last couple of days, wanting me to hold his hand, scratch his head or arm and rub his belly when it hurts. I will be sitting by his bedside today to make sure he knows he's not alone.
White Cells 1.4
Red Cells 3.48
Platelets 149
They said within the next day or two his white cells will drop to under 1 and he will then need blood products, such as platelets. Tomorrow I will let you know what that means and what many of you can do to help us with this.
Thank you for the continued prayers. Apparently we have the worse to go through before it gets better.
He was so excited to get his chicken but after eating he said that it didn’t have any flavor. It tasted like cardboard. He then proceeded to tell me that after I had left they had taken him downstairs to get x-rays of his chest, due to the pain had increased. It got so bad that they had to give him morphine to ease the pain faster. They also gave him some cream to put on his ribs that should help relax the muscles around the ribs. They had taken him off oxygen earlier in the day, but since he was on morphine they put him back on the oxygen. His tongue has turned white. Not sure why. They have given him another mouthwash to help with that.
By the time his red headed nurse, Jenni came in to do his midnight vitals, he was again in a lot of pain and wanted to sleep. She gave him some Benadryl and Morphine and out he went. Throughout the night she gave him more morphine and finally some Oxycodone this morning so it would last longer.
The doctor on call this weekend is Dr Carla Kurkjian. She examined Stevan’s ribs and told us that the x-rays showed nothing was broken and that it was more than likely from the neulasta shot he received on Thursday. She told him to be sure and do his breathing exercises so that he would expand his lungs and prevent pneumonia.
Dr. Khalil, Stevan's hematologist oncologist, stopped by this morning to visit. He asked if Dr. Holter has discussed with us, maintance medicines after the transplant. He agrees that there is not a right or wrong way to proceed, but encouraged us to begin thinking about what we want to do after the transplant is complete and be ready to discuss it with him and Dr. Holter at that time. Stevan is looking forward to not being on any meds after treatment if they are not needed. The Revlimid, makes him shaky and the dex has its own symptoms he has to deal with.
As I began to type this post up, Stevan got sick to his stomach and up came his fried chicken from last night. I called the nurse and she brought him some more anti- nausea medicine. This time it has knocked him out. He should sleep most of this afternoon.
Seeing him like this is heart breaking. I know that he's ok when he picking on me and giving me a hard time. When he's not feeling good he gets really sappy and lets his guard down. Over the last couple of days I've seen him near tears as his chin begins to quiver. He's been quite clingy over the last couple of days, wanting me to hold his hand, scratch his head or arm and rub his belly when it hurts. I will be sitting by his bedside today to make sure he knows he's not alone.
I'm actually enjoying the time to relax, sleep in, watch tons of TV, play on
the internet and read. The only thing better would be at home doing all of
this. Many have asked when we will get to come home. The doctors have said 10 to
14 days from transplant. That would be around June 7 to 9. Stevan's counts came
down drastically last night.
 |
| Types of cells in the blood. |
Red Cells 3.48
Platelets 149
They said within the next day or two his white cells will drop to under 1 and he will then need blood products, such as platelets. Tomorrow I will let you know what that means and what many of you can do to help us with this.
Thank you for the continued prayers. Apparently we have the worse to go through before it gets better.
Friday, May 25, 2012
It Begins Day +2
I have been giving Stevan some extra attention today. He's not felt good today and was very needy today. I haven't had a lot of time to write since I was either rubbing his back, scratching his head or just being close to him at his bedside most of the day. We finally took a short nap this afternoon, when I had a headache that wouldn't go away.
Yesterday afternoon Stevan began to complain about his right upper ribs were hurting. They believe this is from the Neulasta he was given yesterday. During his 4am vitals, his red head nurse, Jen, was a bit concerned with his oxygen level hanging around 88%. She ended up getting him talking and it came up. But then during his 8am and noon vital readings his oxygen continued to be a bit low.
The waves of nauseous began today. Stevan got up this morning not feeling good, but ate a decent breakfast and lunch. Shortly after lunch he got to feeling sick and very groggy, couldn't hold his eyes open. He got to sweating even though the room was cool (68). About that time his nurse Jordon came in and I let her know what was going on. She then put him on oxygen and began to monitor him. Soon after that came the chest x-ray and then more lasix. They are concerned that he still has fluid in his body, possibly in his lungs and/or pressing on his heart that is causing the low oxygen levels. They consider his level to be at risk and they are taking precautions.
Lovenox, a blood thinner was administered this evening in the belly. Stevan was not happy about that. Debby, the daytime supervisor, told him that it was ordered daily to be injected into his stomach... OH how he hates these! They burn! She went slow to try and keep it from burning so much.
Dinner was not successful tonight for Stevan. After he took a shower, he became very nauseous. He ate a few bites of chicken noodle soup and drank some Sprite. He was done. I couldn't even entice him with a plain burrito this evening after going to Taco Bell.
Tomorrow I'm going to catch up with a former colleague for lunch and get our laundry done for another week. So yes I'm going to take some time out for myself and get out of the hospital for a while.
 |
| Jen, Stevan's redheaded nurse. She was a bit shy hiding behind her mask. |
The waves of nauseous began today. Stevan got up this morning not feeling good, but ate a decent breakfast and lunch. Shortly after lunch he got to feeling sick and very groggy, couldn't hold his eyes open. He got to sweating even though the room was cool (68). About that time his nurse Jordon came in and I let her know what was going on. She then put him on oxygen and began to monitor him. Soon after that came the chest x-ray and then more lasix. They are concerned that he still has fluid in his body, possibly in his lungs and/or pressing on his heart that is causing the low oxygen levels. They consider his level to be at risk and they are taking precautions.
Lovenox, a blood thinner was administered this evening in the belly. Stevan was not happy about that. Debby, the daytime supervisor, told him that it was ordered daily to be injected into his stomach... OH how he hates these! They burn! She went slow to try and keep it from burning so much.
Dinner was not successful tonight for Stevan. After he took a shower, he became very nauseous. He ate a few bites of chicken noodle soup and drank some Sprite. He was done. I couldn't even entice him with a plain burrito this evening after going to Taco Bell.
Tomorrow I'm going to catch up with a former colleague for lunch and get our laundry done for another week. So yes I'm going to take some time out for myself and get out of the hospital for a while.
Thursday, May 24, 2012
Still Hanging in There Day +1
I don't whether to be relieved or scared. Stevan is still doing well even though his numbers are still going down. He has not been sick, no diarrhea, and no nausea. This was really an uneventful day for us. He slept, or tried to sleep most of the day. I had a hard time getting him to get up take his daily shower and walk until after 6 tonight. When he did walk he did more than I expected. Yesterday he walked the "track" three times. I told him he should do at least one more than that. He made 10 rounds.
On Monday a stool sample was taken for testing. He tested positive for Vancomycin Resistant Enterococci, VRE for short. This is germs found in the bowel that is resistant to the antibiotic Vancomycin, that is used to treat the infection caused by Enterococci. They don't know how he got it, but people who are at risk for getting VRE are those who have been in an intensive care unit, are sick with a long-term illness, have been on many different types of antibiotics, have had major surgery or had an organ or bone marrow transplant. This means that he is in isolation to prevent VRE from spreading to other patients. Nurses coming into his room now have to wear gowns and gloves. Visitors are to report to the nurses station for directions on what to do to enter his room now. I was told to wash my hands up to my elbow constantly. I'm to use the alcohol-based hand sanitizer coming and going from his room. The main question we had was "Is he contagious?" Answer, "NO". Its more to protect Stevan than anyone else. VRE is not spread by coughing or sneezing. It can be on your hands, and can get their from your stool or urine. It spreads by touching anything if you do not clean your hands. Hands must be washed for ten seconds or cleaned using an alcohol-based hand cleaner. It really isnt as bad as it sounds.
On to the numbers! When we asked the doctors about Stevan's M-spike results from January's bone marrow biopsy, we discovered he obtained zero. Yeah! So that is why they were pushing for him to do the transplant. Looking at his blood test results from last Thursday during pre-op and then last nights numbers here are the results.
5/17 5/24
White Cells 8.6 3.2
Red Cells 4.05 3.31
Platelets 404 244
Hemoglobin 12.6 10.4
In other medical things to report for the day... Stevan was given Neulasta today, to get his white cell back up to working, even though his numbers are not low yet. This will cause some aches and pains similar to his neupogen shots he had before his harvest. Talking to his evening nurse tonight, she said that it would be about day 7 when his numbers get down to their lowest numbers. She also said that he would be allowed to go home when his ANC, absolute neutrophil counts, is greater than 500 for 3 days. Neutrophils are a type of white blood cell that fights against infection and must be calculated by a formula. I'll be asking for this count now.
After posting pictures of Stevan the last couple of days, I've had several people ask why he was so swollen. Last night we discovered he had gained 18 lbs in 24 hours, due to all of the fluids he was getting. Even the nurses were surprised at how much he was holding. I asked the doctors this morning about his bloating. They decided to give him a one time shot of lasix to help flush him out. LOL... he got up every 30 to 45 minutes for 5 hours to relieve himself. He just got weighed tonight and he has lost 10 lbs since last night. The lasix are doing their job.
All is going well which proves the prayers are working. Thank you!
On Monday a stool sample was taken for testing. He tested positive for Vancomycin Resistant Enterococci, VRE for short. This is germs found in the bowel that is resistant to the antibiotic Vancomycin, that is used to treat the infection caused by Enterococci. They don't know how he got it, but people who are at risk for getting VRE are those who have been in an intensive care unit, are sick with a long-term illness, have been on many different types of antibiotics, have had major surgery or had an organ or bone marrow transplant. This means that he is in isolation to prevent VRE from spreading to other patients. Nurses coming into his room now have to wear gowns and gloves. Visitors are to report to the nurses station for directions on what to do to enter his room now. I was told to wash my hands up to my elbow constantly. I'm to use the alcohol-based hand sanitizer coming and going from his room. The main question we had was "Is he contagious?" Answer, "NO". Its more to protect Stevan than anyone else. VRE is not spread by coughing or sneezing. It can be on your hands, and can get their from your stool or urine. It spreads by touching anything if you do not clean your hands. Hands must be washed for ten seconds or cleaned using an alcohol-based hand cleaner. It really isnt as bad as it sounds.
 |
| Stevan making phonecalls tonight. |
5/17 5/24
White Cells 8.6 3.2
Red Cells 4.05 3.31
Platelets 404 244
Hemoglobin 12.6 10.4
In other medical things to report for the day... Stevan was given Neulasta today, to get his white cell back up to working, even though his numbers are not low yet. This will cause some aches and pains similar to his neupogen shots he had before his harvest. Talking to his evening nurse tonight, she said that it would be about day 7 when his numbers get down to their lowest numbers. She also said that he would be allowed to go home when his ANC, absolute neutrophil counts, is greater than 500 for 3 days. Neutrophils are a type of white blood cell that fights against infection and must be calculated by a formula. I'll be asking for this count now.
After posting pictures of Stevan the last couple of days, I've had several people ask why he was so swollen. Last night we discovered he had gained 18 lbs in 24 hours, due to all of the fluids he was getting. Even the nurses were surprised at how much he was holding. I asked the doctors this morning about his bloating. They decided to give him a one time shot of lasix to help flush him out. LOL... he got up every 30 to 45 minutes for 5 hours to relieve himself. He just got weighed tonight and he has lost 10 lbs since last night. The lasix are doing their job.
All is going well which proves the prayers are working. Thank you!
Wednesday, May 23, 2012
Transplant - Day Zero
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| The magical bag. The red stuff is the stem cells |
This morning started earlier for Stevan than yesterday. I was able to get him up to eat and shower before the doctors made their rounds at 10am. Yeah, rough huh! Grace is our nurse again today and she gave him his pre-meds; Tylenol, Benadryl, and Hydrocortisone 30 minutes before the transplant. Within 5 minutes of receiving the Benadryl, he was out! He’s apparently very sensitive to it.
They had around 2.6 million cells in three bags. It took about 50 minutes to have all three thawed, verified and dripped through the line. I had been told that the preservative that the cells were in smelled like cream corn. It does. I actually couldn’t smell it at first, but an hour after transplant, I went to open the door to leave the room, I caught a whiff of the smell. It must be coming from Stevan’s pores in his skin. Even five hours later, the smell is even more potent in the room. I’m not sure I will be able to eat cream corn again.
 |
| Wearing his other "vacation" shirt, this is what he's done most of the day. |
Anabel, from Physical Therapy, also
came today to give him a list of exercises that he needs to do each day to keep
his strength up. He didn’t look that interested in doing them. Matter of fact,
this afternoon was the first time I had been able to get him up and out of the
room to walk the hall in the unit, all of about 40 yards in length.
We are sitting tight, enjoying the
lazy days and watching TV and movies all day… yeah hard time, I know. It’s just
another day in the BMT Unit.
I have been working on fixing this site so that you can post comments on each blog. Not sure if I've got it fixed or not. I changed a few things, so let me know. Thanks Pat for pointing that out to me.
Tuesday, May 22, 2012
Good Day -1
Last night, Stevan was given his radical chemo, Melphalan. It was a small bag that only took about 30 minutes to give through his IV. They told him it was about 11 times as much as a normal dose of chemo. They have been giving him Potassium Chloride with lasics in it to help flush the chemo out of his kidneys and bladder. They want the chemo to do its job but not sit in these organs which could damage them.
Elaine was Stevan's red headed nurse for part of the night last night. She has worked in the unit for 16 years. This morning, Grace, a young blond nurse came in to take over. She's been here 3 years. When Stevan woke up, she noticed his central line bandage looked kind of nasty. After he showered, she changed his bandaged. She will be back tomorrow.
Stevan had about a 3.5 hour nap after lunch. He stayed up late last night and I guess it caught up with him. He's in good spirits today and still has an appetite. I've been hungry for hot wings, so I went to grab us some for tonight. While I was gone, a couple of dietitians came in to discuss is diet. They encouraged him to eat things such as meat and milk; as much protein as possible. They are going to come back later so they can talk to me, since I do the cooking.
Tomorrow is the big day, Stevan's new birthday, the day he gets his stem cells. I think he's gaining persective and is being more positive about the transplant. He's been told that the last person that came through that had an auto transplant, didn't really get sick. I think hearing good things about other transplant patients is helping his attitude.
This evening we have nurse Jennifer, the night shift supervisor. She is one of the new ones assigned to the unit and has been here since August. She talked to us in more detail about what to expect in the weeks to come. She expects us to be moved down the hall and out the double doors out of the unit, and on the regular floor by Friday. So we now have something to look forward to.
I will post again tomorrow and try to give more insight about everything.
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| Grace cleaning and changing his dressing. Not the most flattering picture... but you can see how he's bloated. |
Stevan had about a 3.5 hour nap after lunch. He stayed up late last night and I guess it caught up with him. He's in good spirits today and still has an appetite. I've been hungry for hot wings, so I went to grab us some for tonight. While I was gone, a couple of dietitians came in to discuss is diet. They encouraged him to eat things such as meat and milk; as much protein as possible. They are going to come back later so they can talk to me, since I do the cooking.
Tomorrow is the big day, Stevan's new birthday, the day he gets his stem cells. I think he's gaining persective and is being more positive about the transplant. He's been told that the last person that came through that had an auto transplant, didn't really get sick. I think hearing good things about other transplant patients is helping his attitude.
This evening we have nurse Jennifer, the night shift supervisor. She is one of the new ones assigned to the unit and has been here since August. She talked to us in more detail about what to expect in the weeks to come. She expects us to be moved down the hall and out the double doors out of the unit, and on the regular floor by Friday. So we now have something to look forward to.
I will post again tomorrow and try to give more insight about everything.
Monday, May 21, 2012
It Begins... Day -2
It has been a very busy few days. I don't think I sat down over the last three days except when I was riding in the car and I sat down to eat. Stevan had his pre-op on Thursday, then Friday and Saturday was spent taking care of last minute things. Yesterday we went to church and came home to finish packing, had Dustin's birthday party with lots of friends and family,
so we were kind of late getting off to the city last night .
We got to our hotel around 10:30pm. At pre-op, Thursday, we filled out paperwork and got him pre-registered for surgery to put in his central line. We had to be here at the out patient surgery at 5:30 am this morning. His surgery is at 7:30 am and lasted about a half hour. They put in a Quinton catheter, double-lumen. He's a bit sore from it.
I have to talk about the wonderful nurse we have here at the unit. Debby is the units daytime supervisor. She says that they normally have a 3 or 2 to 1 ratio of patients to nurses. She has been in our room most of the day getting to know us, learning about Stevan's habits, medicines, tendencies and getting a good dose of his sense of humor. She is a woman of faith. and told us soon after we arrived that her mother had multiple myeloma. She had been in "remission" for a while before developing pancreatic cancer, which took her life about 4mths later, last year. She has told us what we should expect from the nurses over the weeks to come and told us to speak up if we think they are not doing what they should be doing.
He has a small room, with a bathroom. Only he is allowed to use it. They will be measuring everything coming out and going in him. I will be sleeping in room with him in a nice overstuffed recliner but I will have to shower and use the visitors bathroom down the hall. Everyone going in and out of his room have to wash their hands.
Many people have asked how to send cards to Stevan. They do not allow fresh flowers, or silk flowers with moss in the unit. He can not have honey, fresh fruits or vegetables, or black pepper. All of his drinks must be sealed, all food must be covered and freshly cooked. They do allow balloon bouquets, cookie bouquets, and candies or snacks (as long as they are sealed up).
The address is as follows:
OU MEDICAL CENTER/Presbyterian Tower
C/o The Bone Marrow Transplant Unit/room #702
Stevan Womack
700 N.E. 13th Street
Oklahoma City, OK 73104
His Respatory Therapist, Albert, came in around 5pm and gave Stevan a breathing treatment and albruteral. He wont have that again unless he's here for more than 21 days. This is to prevent him from getting pneumonia. They will begin his heavy chemo around 7pm tonight. He will be given Melphanlan over the next two days. This will cause him to loose his hair, his appetite, have diarrhea, mouth sores and possible fever. It wont kick in for a few days though.
They are getting ready to do a shift change and do bedside reports so I will close for now.
 |
| Quinton catheter, double -lumen |
We got to our hotel around 10:30pm. At pre-op, Thursday, we filled out paperwork and got him pre-registered for surgery to put in his central line. We had to be here at the out patient surgery at 5:30 am this morning. His surgery is at 7:30 am and lasted about a half hour. They put in a Quinton catheter, double-lumen. He's a bit sore from it.
I have to talk about the wonderful nurse we have here at the unit. Debby is the units daytime supervisor. She says that they normally have a 3 or 2 to 1 ratio of patients to nurses. She has been in our room most of the day getting to know us, learning about Stevan's habits, medicines, tendencies and getting a good dose of his sense of humor. She is a woman of faith. and told us soon after we arrived that her mother had multiple myeloma. She had been in "remission" for a while before developing pancreatic cancer, which took her life about 4mths later, last year. She has told us what we should expect from the nurses over the weeks to come and told us to speak up if we think they are not doing what they should be doing.
He has a small room, with a bathroom. Only he is allowed to use it. They will be measuring everything coming out and going in him. I will be sleeping in room with him in a nice overstuffed recliner but I will have to shower and use the visitors bathroom down the hall. Everyone going in and out of his room have to wash their hands.
Many people have asked how to send cards to Stevan. They do not allow fresh flowers, or silk flowers with moss in the unit. He can not have honey, fresh fruits or vegetables, or black pepper. All of his drinks must be sealed, all food must be covered and freshly cooked. They do allow balloon bouquets, cookie bouquets, and candies or snacks (as long as they are sealed up).
The address is as follows:
OU MEDICAL CENTER/Presbyterian Tower
C/o The Bone Marrow Transplant Unit/room #702
Stevan Womack
700 N.E. 13th Street
Oklahoma City, OK 73104
His Respatory Therapist, Albert, came in around 5pm and gave Stevan a breathing treatment and albruteral. He wont have that again unless he's here for more than 21 days. This is to prevent him from getting pneumonia. They will begin his heavy chemo around 7pm tonight. He will be given Melphanlan over the next two days. This will cause him to loose his hair, his appetite, have diarrhea, mouth sores and possible fever. It wont kick in for a few days though.
They are getting ready to do a shift change and do bedside reports so I will close for now.
Thursday, May 17, 2012
Expectations
What are we expecting at the Bone Marrow Unit? Many have asked if he can have visitors, the answer is yes. They have a very open visiting hour policy, except for three times during the day, 6:30 to 7:30am, 2:30 to 3:30pm, and 10:30 to 11:30pm. During these times the nurses will be giving shift reports. Children under 14 are allowed to visit (with some restrictions due to the increase incidence of and exposure to contagious conditions.) Of course if you are sick we ask that you don't visit, but anyone can come visit if you are in the area. If you can't visit, he will have a mailing address while he is there for you to send him well-wishes. We don't have a room number yet, but I will post as soon as I know.
OU MEDICAL CENTER/Presbyterian Tower
C/o The Bone Marrow Transplant Unit/room #______
700 N.E. 13th Street Oklahoma City, OK 73104
The Bone Marrow Unit is an 8-beds intensive care unit. The rooms have a positive-pressure HEPA filtration airflow system. It's designed to help protect patients from infections. Stevan will be able to walk out into the hallway with a mask, but no further than the double doors leading out of the unit. Stevan will have a daily routine with chores that must be completed each day. These will be divided up between the 3shifts.
Between 7am and 3pm, he will either bathe with anti microbial bath towelettes or soap. If he feels too sick, his nurse or I will assist him. The daily bathing will help control the growth of bacteria on his skin. His bed linens will be changed daily as well. He will be weighed between 3 and 9pm. Finally at midnight, the nurse will draw his daily blood labs. He will constantly have his vital signs, his temperature monitored, blood pressure, heart rate, and respiratory rate every 4hours. They will be monitoring all of his fluids he receives and he eliminates. He will have many resources available to him while he's there. A physical therapist is consulted for every bone marrow patient. They will visit him daily. The therapist will help him to exercise and maintain his strength. This is one of the keys to him being able to go home. A dietitian is also consulted with to help him get the foods that he can tolerate or help with special snacks or request. Social services will be consulted to help with financial aid, medications, home health care and a variety of other needs. A chaplain will be available to him during his stay as well.
OU MEDICAL CENTER/Presbyterian Tower
C/o The Bone Marrow Transplant Unit/room #______
700 N.E. 13th Street Oklahoma City, OK 73104
The Bone Marrow Unit is an 8-beds intensive care unit. The rooms have a positive-pressure HEPA filtration airflow system. It's designed to help protect patients from infections. Stevan will be able to walk out into the hallway with a mask, but no further than the double doors leading out of the unit. Stevan will have a daily routine with chores that must be completed each day. These will be divided up between the 3shifts.
Between 7am and 3pm, he will either bathe with anti microbial bath towelettes or soap. If he feels too sick, his nurse or I will assist him. The daily bathing will help control the growth of bacteria on his skin. His bed linens will be changed daily as well. He will be weighed between 3 and 9pm. Finally at midnight, the nurse will draw his daily blood labs. He will constantly have his vital signs, his temperature monitored, blood pressure, heart rate, and respiratory rate every 4hours. They will be monitoring all of his fluids he receives and he eliminates. He will have many resources available to him while he's there. A physical therapist is consulted for every bone marrow patient. They will visit him daily. The therapist will help him to exercise and maintain his strength. This is one of the keys to him being able to go home. A dietitian is also consulted with to help him get the foods that he can tolerate or help with special snacks or request. Social services will be consulted to help with financial aid, medications, home health care and a variety of other needs. A chaplain will be available to him during his stay as well.
Tuesday, May 15, 2012
House cleaning
We are in the final countdown to SCT, stem cell transplant. We have been very busy trying to get things in order. Stevan has been trying to get things done on his honey do list that I wont be able to do once hes out of the hospital. We have both been trying to get things cleaned up around the house. We have to de-dust the house and clean as much as possible before he goes in, since it will need to be clean when he comes home and I'm planning on staying with him the whole time while he's in the hospital.
Im going to keep the other one going but this will be more personalized. I want to be able to connect with other caregivers and MM patience and this is a better way to do that.
We called Sherri, who cleans a friends house, to see if she could help us. She gave us some great ideas on how to clean the house and make it easier to keep it dust free over the coming months. She has also requested to enlist our friends and family that is available to come help us on Friday as we try to knock it out in one day. If we were to have about 3 or 4 people to help we might be able to get it all done in one day.
So why are we doing this? Stevan's immune system will be at zero after the SCT. Any kind of dust, germs or dirt could cause him to get a cold or get sick. He will not be allowed to clean house, mow the lawn, garden, walk barefooted, play with dirt or be around people who are sick. There will be a while when he wont feel like doing anything but eat a little and sleep. He will be resticted in doing a lot of things in order to allow his body to recover, heal and build up his white, red and plasma cells up so that whe will have a strong immune system. For a while he will have to wear a mask around people to help keep him away from germs.
We are getting things together, packing bags, finding clothes for Stevan, house shoes, and things to keep him accupied while he's not sleeping or sick.
Tomorrow, I will cover what we are expecting at the Bone Marrow Unit and things you can do while we are there.
Sunday, May 13, 2012
The Medical Side of Planning for The Transplant
We have known that Stevan was going to do a transplant since about January. He's had an bone biopsy and bone marrow aspiration, EKG, pulmonary function test, and lots of blood test before they would even consider him a candidate for the transplant. After this they decided they could collect his stem cells. April 13 they started giving him Neupongen shots, which makes the body over produce stem cells so that they spill over into the blood. He had to take two shots each day til April 17, when they began the harvest. Dr. Holter, the doctor that is in charge of the stem cell transplant, had ordered 5 million cells CD34, which is the human gene that encodes protein and 12 million cells of Mononuclear, which are in short, white blood cells. They were able to collect 4.3 million cells... That was great. The second day I think they collect about the same.
They wanted him to do one more round of Revlimid and dexamethasone before he goes in to do the transplant. He'll finish it up on Sunday just in time to go into the hospital.
This sums up the medical aspects of our planning. The rest of the planning is mental, physical and emotional. I will try to go into that tomorrow.
They wanted him to do one more round of Revlimid and dexamethasone before he goes in to do the transplant. He'll finish it up on Sunday just in time to go into the hospital.
This sums up the medical aspects of our planning. The rest of the planning is mental, physical and emotional. I will try to go into that tomorrow.
Friday, May 11, 2012
The Transplant Process
I want to spend the next week. Going over a few things that we are about to do. Today I wanted to talk about the transplant process. I hope that this will answer a lot of questions for everyone, who is wondering what is going on.
Stevan will be going through a autologous transplant. This is where he is his own donor. He donated his own stem cells back on April 17 and 18th. It was then frozen and stored.
He will be going through a peripheral stem cell transplantation. This is where he will have a high-dose chemotherapy and then transplantation. Its called "high-dose" because the doses he will receive are from 5 to 10 times higher than the doses given during traditional chemotherapy. Such a high dose destroys cancer cells but also healthy cells too, which divide and reproduce rapidly, such as the cells that line the mouth, stomach, intestines and the bone marrow.
The blood is made up of red and white cells and platelets. The red cells carry oxygen from your lungs throughout the body to all your organs and return carbon dioxide to the lungs to be exhaled. White blood cells prevent and fight infections and platelets help the blood to clot. Stem cells develop into red cell, white cells or platelets. They are concentrated in your bone marrow in bones like your hips, sternum and skull, but can also be found in the blood that circulates within your body (peripheral blood). Stem cells are the only adult cells that make more than one kind of cell type.
So after this "high-dose" of chemotherapy that will destroy his stem cells, his body will have less ability to carry oxygen, and will be at a higher risk of infections and bleeding problems. This will start on May 21, after he has his CVC put in.
CVC is short for Central Venous Catheter, or central line. We are not sure what kind he will get. The common types are Hickman and Quinton. This will be used to administer chemotherapy, medications, IV fluids, blood producs, IV feedings, draw blood and stem cell transplant. I will explain more about this on May 21 when he gets it put in.
Tomorrow I want to share with you how we are planning for the transplant. I must say the best layed plans dont always go as planned. Until tomorrow...
Stevan will be going through a autologous transplant. This is where he is his own donor. He donated his own stem cells back on April 17 and 18th. It was then frozen and stored.
He will be going through a peripheral stem cell transplantation. This is where he will have a high-dose chemotherapy and then transplantation. Its called "high-dose" because the doses he will receive are from 5 to 10 times higher than the doses given during traditional chemotherapy. Such a high dose destroys cancer cells but also healthy cells too, which divide and reproduce rapidly, such as the cells that line the mouth, stomach, intestines and the bone marrow.
The blood is made up of red and white cells and platelets. The red cells carry oxygen from your lungs throughout the body to all your organs and return carbon dioxide to the lungs to be exhaled. White blood cells prevent and fight infections and platelets help the blood to clot. Stem cells develop into red cell, white cells or platelets. They are concentrated in your bone marrow in bones like your hips, sternum and skull, but can also be found in the blood that circulates within your body (peripheral blood). Stem cells are the only adult cells that make more than one kind of cell type.
So after this "high-dose" of chemotherapy that will destroy his stem cells, his body will have less ability to carry oxygen, and will be at a higher risk of infections and bleeding problems. This will start on May 21, after he has his CVC put in.
CVC is short for Central Venous Catheter, or central line. We are not sure what kind he will get. The common types are Hickman and Quinton. This will be used to administer chemotherapy, medications, IV fluids, blood producs, IV feedings, draw blood and stem cell transplant. I will explain more about this on May 21 when he gets it put in.
Tomorrow I want to share with you how we are planning for the transplant. I must say the best layed plans dont always go as planned. Until tomorrow...
Thursday, May 10, 2012
Welcome to my new site
I have wanted to start an actual blog for sometime, but didn't know how to really go about doing it after using caring bridge. It is so easy to use but has limitations on what I can do to truly make the site our own. I'm sure this site will evolve over the next few months as I have more time to figure out how this site works and as we go through Stevans' stem cell transplant.
I will continue to update the caring bridge site with basic information on Stevans' health issue and what he is going through. This site will also contain Stevans' update but will follow more thoughts, feelings, and desires from my viewpoint. It will be a more personal look at his journey through Multiple Myeloma.
So now onto the medical report... Stevan has been feeling better physically over the past two weeks. He looks good and has lost a lot of the swelling that the steroids had done to him since Christmas. He has been on Hydrocortisone for the past 2 1/2 weeks and has felt better than he has in over a year. Dr Holter, stem cell doctor put him on this after his stem cell harvest when they discovered that his adrenal gland was not working properly.
Yesterday was Stevan's Birthday. He turned 41. It has been almost one year since his arm broke which led us down the Multiple Myeloma path. It was uneventful... YEAH!!! The day before I baked him up some chocolate and apple fried pies, along with his favorite dish, enchilada casserole. Tonight I'm taking him out to eat at his favorite restaurant, Genghis Grill. I know it doesn't sound like much, but he is so hard to buy for. I figure he can enjoy all of his favorite foods, because in a little over a week, he wont feel like eating anything, after receiving his chemo post-transplant.
Over the next week I will try to summarize what Stevan has, is and will be doing. I feel like I need to kind of remind you of where he's been before he begins the stem cell transplant.
I will continue to update the caring bridge site with basic information on Stevans' health issue and what he is going through. This site will also contain Stevans' update but will follow more thoughts, feelings, and desires from my viewpoint. It will be a more personal look at his journey through Multiple Myeloma.
So now onto the medical report... Stevan has been feeling better physically over the past two weeks. He looks good and has lost a lot of the swelling that the steroids had done to him since Christmas. He has been on Hydrocortisone for the past 2 1/2 weeks and has felt better than he has in over a year. Dr Holter, stem cell doctor put him on this after his stem cell harvest when they discovered that his adrenal gland was not working properly.
Yesterday was Stevan's Birthday. He turned 41. It has been almost one year since his arm broke which led us down the Multiple Myeloma path. It was uneventful... YEAH!!! The day before I baked him up some chocolate and apple fried pies, along with his favorite dish, enchilada casserole. Tonight I'm taking him out to eat at his favorite restaurant, Genghis Grill. I know it doesn't sound like much, but he is so hard to buy for. I figure he can enjoy all of his favorite foods, because in a little over a week, he wont feel like eating anything, after receiving his chemo post-transplant.
Over the next week I will try to summarize what Stevan has, is and will be doing. I feel like I need to kind of remind you of where he's been before he begins the stem cell transplant.
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