He's feeling Normal...LOL Day +7

In Stevan's words to Dr. Jennifer Holter this morning, "I don't feel any different than I normally do." He has had arm and back pain and diarrhea from his adrenal gland not working for so long, what he's going through now seems like no big deal. After eating a few bites of his breakfast, he slept several hours this morning. He's still got some pain in his right upper ribs, but it is better than it was.

We are trying to get his diarrhea under control with Imodium every 4 hours, but haven't reigned it in yet. We are keeping his nausea in check with Zofran, Ativan, and Phenergan. We have found if he takes either Zofran or Ativan before he eats, he doesn't get sick. If he's feeling sick to his stomach around bedtime, Phenergan helps and puts him to sleep. So far he has not experienced major Mucositis, which is sores in his mouth. As of this morning he has just a small sore, so his Chlorhexidine Gluconate (Peridex) oral rinse is working. Today he has been drinking a lot of water. I'm guessing he's slightly dehydrated since he's craving water.

Stevan has become very sensitive to the smells around him, to the point his food doesn't smell good. I had to laugh this morning when he said his eggs, pancake, and sausage tasted like it smelled... "well I would hope so" is what I was thinking. He has not had much of an appetite, but has forced himself to eat a little each day. He says everything taste like cardboard. Even the chocolate milkshake I got him tonight tasted like chalk, but he drank about half of it, along with the patti from his hamburger I picked up for his dinner. As you have guessed, we both are tired of the hospital food, so I've been picking up a few things that sounds good to him locally around the hospital.

His counts for today were
White Cell        .2
Red Cell         3.47
Hemoglobin  10.8
Platelets        52
He had a low potassium count last night so they gave him 40 mEq through his IV.

I must say we are are very blessed that he's not experienced severe symptoms so far. They say he will loose his hair, but so far its hanging on. This morning the doctor said she's expecting us to be here another 7 to 10 days. They say his numbers will continue to come down before they go back up. So we will continue to wait.